HIPAA Notice of Privacy Practices
Protected Health Information (PHI) about you may be collected on FindingFive via study participation or other features of our service. This notice describes how your PHI may be used and disclosed and how you can get access to this information. Please review it carefully.
Please note that this notice only applies to you if you have participated in a study on the Service that collects your PHI.
Your RightsWhen it comes to your health information, you have certain rights. This section explains your rights and some of our responsibilities to help you.
Get a copy of your PHI
- You can ask to see or get a copy of your health information we have about you. Ask us how to do this.
- We will provide a copy or a summary of your health and claims records, usually within 30 days of your request. We may charge a reasonable, cost-based fee.
Ask us to correct your PHI
- You can ask us to correct your health information if you think they are incorrect or incomplete. If your incorrect health information resides in your participant profile, you can make the corrections on your own by logging into our service and editing your profile.
- If your incorrect health information resides in participant data collected in individual research studies, it cannot be corrected in most cases. However, you may ask us to contact the researchers who run the studies to correct it for you, but they are not under any obligation to honor such requests.
- In all other cases, ask us how to correct your health information. We may say "no" to your request, but we’ll tell you why in writing within 60 days.
Request confidential communications
- You can ask us to contact you in a specific way (for example, a different email address from the one on your profile), as long as the requested means of communication belongs to you.
- We will consider all reasonable requests, but may say "no" if we believe it may be a case of identity theft.
Ask us to limit what we use or share
- You can ask us not to use or share certain health information for our operations. However, in some cases, not sharing certain health information will impact your ability to use our service. We will always tell you when that happens.
Get a list of those with whom we’ve shared information
- You can ask for a list (accounting) of the times we’ve shared your health information for six years prior to the date you ask, who we shared it with, and why.
- We will include all the disclosures except for cases where the privacy of other users of the platform may be affected, and certain other disclosures (such as any you asked us to make). We’ll provide one accounting a year for free but will charge a reasonable, cost-based fee if you ask for another one within 12 months.
Get a copy of this privacy notice
- You can get a digital copy of this notice at any time on our website. Unfortunately we do not provide paper copies as an effort to reduce environmental impact.
Choose someone to act for you
- If you have given someone medical power of attorney or if someone is your legal guardian, that person can exercise your rights and make choices about your health information.
- We will make sure the person has this authority and can act for you before we take any action.
File a complaint if you feel your rights are violated
- You can complain if you feel we have violated your rights by contacting us via email at [email protected].
- You can file a complaint with the U.S. Department of Health and Human Services Office for Civil Rights by sending a letter to 200 Independence Avenue, S.W., Washington, D.C. 20201, calling 1-877-696-6775, or visiting www.hhs.gov/ocr/privacy/hipaa/complaints/.
- We will not retaliate against you for filing a complaint.
For certain health information, you can tell us your choices about what we share. If you have a clear preference for how we share your information in the situations described below, talk to us. Tell us what you want us to do, and we will follow your instructions.In these cases, you have both the right and choice to tell us to:
- Share information with your family, close friends, or others involved in payment for your care
- Share information in a disaster relief situation
If you are not able to tell us your preference, for example if you are unconscious, we may go ahead and share your information if we believe it is in your best interest. We may also share your information when needed to lessen a serious and imminent threat to health or safety.In these cases we never share your information unless you give us written permission:
- Marketing purposes
- Sale of your information
How do we typically use or share your health information?We typically use or share your health information in the following ways.
Help manage the research studies you participate inWe can use your health information and share it with researchers whose studies you participate in.
Run our organizationWe can use and disclose your information to run our organization and contact you when necessary.
How else can we use or share your health information?We are allowed or required to share your information in other ways – usually in ways that contribute to the public good, such as public health and research. We have to meet many conditions in the law before we can share your information for these purposes. For more information see: www.hhs.gov/ocr/privacy/hipaa/understanding/consumers/index.html.
Help with public health and safety issuesWe can share health information about you for certain situations such as:
- Identifying health issues, in particular cognitive and behavioral health issues
- Reporting suspected abuse, neglect, or domestic violence
- Preventing or reducing a serious threat to anyone’s health or safety
- We can use or share your information for behavioral research.
Comply with the lawWe will share information about you if state or federal laws require it, including with the Department of Health and Human Services if it wants to see that we’re complying with federal privacy law.
Respond to organ and tissue donation requests and work with a medical examiner or funeral director
- We can share health information about you with organ procurement organizations.
- We can share health information with a coroner, medical examiner, or funeral director when an individual dies.
Address workers’ compensation, law enforcement, and other government requestsWe can use or share health information about you:
- For workers’ compensation claims
- For law enforcement purposes or with a law enforcement official
- With health oversight agencies for activities authorized by law
- For special government functions such as military, national security, and presidential protective services
Respond to lawsuits and legal actionsWe can share health information about you in response to a court or administrative order, or in response to a subpoena.
- We are required by law to maintain the privacy and security of your protected health information.
- We will let you know promptly if a breach occurs that may have compromised the privacy or security of your information.
- We must follow the duties and privacy practices described in this notice and give you a copy of it.
- We will not use or share your information other than as described here unless you tell us we can in writing. If you tell us we can, you may change your mind at any time. Let us know in writing if you change your mind.
For more information see: www.hhs.gov/ocr/privacy/hipaa/understanding/consumers/noticepp.html.